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Re: Good Luck To Us. -Nancy
Nancy, the problem is Mike's illness. His Parkinsons is very bad, he has a few good hours a day, but it's 20 minutes here, or an hour there, and hell on wheels in between when he is frozen and rigid and must be lifted and re-positioned frequently, and when he's like that he's dead weight. He also loses his speech so must be watched because at that time he cannot tell you what's wrong. He cannot swallow his every two hours (or less) meds, and we spoon feed or use a baby syringe. It's 24/7. He lays there unable to move, and doesn't want to be left alone, so I spend what seems to be my whole life in the room with him. A nursing home would be a death sentence in more ways than one. We cannot do that to him. When he is not symptomatic, he'll do normal things, like take a shower. Last Sunday he slipped getting out and has had a real set-back with an injured shoulder and arm. The doctor wanted him to go to the ER for an X-ray, but he is terrified of catching the virus at the hospital. He absolutely refuses to go. One of his Parkinsons symptoms is dystonia, where the muscles twist and contort. His back is bent and his head often is stuck on his chest. Since the fall, he is much more bent and unable to move the arm normally, and this is what's wrong with all of us. We are watching terrible things.
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