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Hang in there dear, you have found the right place. May I suggest you repost this on the Meeting Group Page. Most of the activity centers there.
I did not have a mastectomy. I can tell you that what you are experiencing is not normal. Have you been to a major cancer center? If not, go. Your surgeon needs to address this issue. A last resort, I would head for the emergency room and refuse to leave until you get help and some answers. Don't give up. I alerted the Meeting board that you are here so some of the women should show up here today.
Try the chat room on this site. It is most active around 7-8 pm east coast time. You might benefit from this as well. If no one is there wait they pop in and out.
Don't give up yet. We all will try to help you with this.