Posted by steve
on 3/23/2005, 3:39 am, in reply to "Re: International Legionella Rehabilitation Survey"
217.42.162.151
Please include me in any survey. I nearly died from it 2 years ago and am still suffering. Information is so hard to come by
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: International Legionella Rehabilitation
: Survey
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: There is a very little literature or
: information
: on the subject of techniques for surviving
: and coping with Legionnaires disease and
: even less money to fund it.
:
: IF there is sufficient interest, I propose
: to conduct an international survey to
: discover more information about surviving
: this dreadful disease.
:
: I will post the results for everyone in the
: group now and future members which will
: hopefully improve your quality of life.
:
: Presently, Doctors all over the world don't
: have
: much data to make recommendations for their
: patients, hopefully this survey will change
: that
: situation.
:
: I am still formulating my ideas, so feel
: free to
: comments, express your needs or other
: requirements, etc. No real names will appear
: in
: the results, and it goes with saying all
: information will remain confidential.
:
: Only LD survivors know the real truth and
: have the experience. I am hoping this survey
: will discover useful hints and tips from
: various parts of the world that can be
: shared
: for the benefit of everyone.
:
: Of course, if nobody participates there will
: be
: no results. I am an engineer by trade, so I
: will buy the software, math is no problem,
: however once I have assessed the response I
: may try to encourage a university or other
: institute to help, which MAY require that
: institute reviewing copies of your medical
: records (sent at your own expense).
:
: Since there is no money (except mine) and my
: spare time, the survey will be emailed. It
: will take time to compile, conduct and
: report, so please don't expect results
: overnight.
:
: The survey will probably comprise a simple
: questionnaire asking basic questions about
: health
: before and after, medications, exercise,
: diet, etc.
:
: Since this is a low cost survey, I can't
: accept
: a qualified acceptance; by that I mean a
: person
: that wants to do bits of the survey.
: Qualified
: acceptances would be classed as No, I simply
: dont have the resources to handle too many
: variables.
:
: Please send general questions to the group
: or my private email address: deepcastle (at)
: hotmail.com
:
: Please, Please Please use the title:
: International Legionella Rehabilitation
: Survey (ILRS)
:
: Tell your doctors, tell your consultants,
: tell anyone that will listen
: I encourage you to participate - Hoping for
: overwhelming response.
:
: Regards,
: John Herbert
:
: PS: Dont lose this chance to make a
: difference.
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