Posted by Scott Whensley on 6/28/2004, 5:22 pm, in reply to "Re: International Legionella Rehabilitation Survey" --Previous Message--
213.2.60.82
It is proving very difficult, one thing i have achieved this week is at my doctors they have agreed to let me put literature on there noice board so i will be approaching all doctors in the area so hopefully this will help every body goes to the doctors!! prevention is a word newspapers dont want to hear they want to sell papers and as you sya death and mayhem sells papers.
: Hi Scott: I have also met the same stone wall
: when writing to newspapers or TV stations. My
: objective is PREVENTION - but that does not
: sell newspapers, death and mayham does.
: Frank
:
:
: --Previous Message--
: Hi,
: My name is Scott Whensley I am a water and
: ventilation consultant at Rentokil, i am
: interested in this site very much i am
: battling to try and raise awareness about
: this disease as not many people are aware of
: it, i conduct surveys to properties to try
: and control the disease, the problem i have
: is no one is awre of it !! i have had some
: success with local newspapers, but the big
: ones arnt interested until someone dies!
: which is quite said when they have the power
: to save people from catching this dredful
: disease. Do you have any sugestions ?
: --Previous Message--
:
:
:
: ================================================
: International Legionella Rehabilitation
: Survey
:
:
:
: ================================================
: There is a very little literature or
: information
: on the subject of techniques for surviving
: and coping with Legionnaires disease and even
: less money to fund it.
: IF there is sufficient interest, I propose to
: conduct an international survey to discover
: more information about surviving this
: dreadful disease.
: I will post the results for everyone in the
: group now and future members which will
: hopefully improve your quality of life.
: Presently, Doctors all over the world don't
: have
: much data to make recommendations for their
: patients, hopefully this survey will change
: that
: situation.
: I am still formulating my ideas, so feel free
: to
: comments, express your needs or other
: requirements, etc. No real names will appear
: in
: the results, and it goes with saying all
: information will remain confidential.
: Only LD survivors know the real truth and
: have the experience. I am hoping this survey
: will discover useful hints and tips from
: various parts of the world that can be shared
: for the benefit of everyone.
: Of course, if nobody participates there will
: be
: no results. I am an engineer by trade, so I
: will buy the software, math is no problem,
: however once I have assessed the response I
: may try to encourage a university or other
: institute to help, which MAY require that
: institute reviewing copies of your medical
: records (sent at your own expense).
: Since there is no money (except mine) and my
: spare time, the survey will be emailed. It
: will take time to compile, conduct and
: report, so please don't expect results
: overnight.
: The survey will probably comprise a simple
: questionnaire asking basic questions about
: health
: before and after, medications, exercise,
: diet, etc.
: Since this is a low cost survey, I can't
: accept
: a qualified acceptance; by that I mean a
: person
: that wants to do bits of the survey.
: Qualified
: acceptances would be classed as No, I simply
: dont have the resources to handle too many
: variables.
: Please send general questions to the group
: or my private email address: deepcastle (at)
: hotmail.com
: Please, Please Please use the title:
: International Legionella Rehabilitation
: Survey (ILRS)
: Tell your doctors, tell your consultants,
: tell anyone that will listen 
: I encourage you to participate - Hoping for
: overwhelming response.
: Regards,
: John Herbert
: PS: Dont lose this chance to make a
: difference.
:
: : :
:
