Posted by Terry Gilmour Terry Previous Message--
on 3/19/2004, 12:21 am, in reply to "Re: International Legionella Rehabilitation Survey"
209.221.40.30
Yes to the confusion and short term memory loss. And even some long term memory loss. I had LD, ARDS and stroke while on ventilator. 4 weeks on vent in coma. It's been 2 and a half years and I still have problems with both confusion and memory loss.
: I have a question about the effects of LD on
: short term memory & confusion. My
: husband is having some problems with both.
: The pnuemonia caused ARDS (acute respiratory
: distress syndrome) & I have read short
: term memory & confusion can result from
: ARDS & persist for awhile. Was wondering
: if anyone else experienced this problems
: after legionairres disease.
: --Previous Message--
: : I have specific questions about the affects
: of LD on vision and/or eye problems. I did
: suffer a stroke while on ventilator, and the
: stroke could have caused the vision problems,
: but my question concerns whether LD could
: have also contributed or could have caused
: lasting problems with vision and
: weakeness/tiredness of eyes.
: Thank you,
: Terry
: --Previous Message--
:
:
:
: ================================================
: International Legionella Rehabilitation
: Survey
:
:
:
: ================================================
: There is a very little literature or
: information
: on the subject of techniques for surviving
: and coping with Legionnaires disease and even
: less money to fund it.
: IF there is sufficient interest, I propose to
: conduct an international survey to discover
: more information about surviving this
: dreadful disease.
: I will post the results for everyone in the
: group now and future members which will
: hopefully improve your quality of life.
: Presently, Doctors all over the world don't
: have
: much data to make recommendations for their
: patients, hopefully this survey will change
: that
: situation.
: I am still formulating my ideas, so feel free
: to
: comments, express your needs or other
: requirements, etc. No real names will appear
: in
: the results, and it goes with saying all
: information will remain confidential.
: Only LD survivors know the real truth and
: have the experience. I am hoping this survey
: will discover useful hints and tips from
: various parts of the world that can be shared
: for the benefit of everyone.
: Of course, if nobody participates there will
: be
: no results. I am an engineer by trade, so I
: will buy the software, math is no problem,
: however once I have assessed the response I
: may try to encourage a university or other
: institute to help, which MAY require that
: institute reviewing copies of your medical
: records (sent at your own expense).
: Since there is no money (except mine) and my
: spare time, the survey will be emailed. It
: will take time to compile, conduct and
: report, so please don't expect results
: overnight.
: The survey will probably comprise a simple
: questionnaire asking basic questions about
: health
: before and after, medications, exercise,
: diet, etc.
: Since this is a low cost survey, I can't
: accept
: a qualified acceptance; by that I mean a
: person
: that wants to do bits of the survey.
: Qualified
: acceptances would be classed as No, I simply
: dont have the resources to handle too many
: variables.
: Please send general questions to the group
: or my private email address: deepcastle (at)
: hotmail.com
: Please, Please Please use the title:
: International Legionella Rehabilitation
: Survey (ILRS)
: Tell your doctors, tell your consultants,
: tell anyone that will listen 
: I encourage you to participate - Hoping for
: overwhelming response.
: Regards,
: John Herbert
: PS: Dont lose this chance to make a
: difference.
:
: : :
: