Posted by ILRS on 3/4/2004, 2:46 pm IF there is sufficient interest, I propose to conduct an international survey to discover more information about surviving this dreadful disease. I will post the results for everyone in the group now and future members which will hopefully improve your quality of life. Presently, Doctors all over the world don't have I am still formulating my ideas, so feel free to Only LD survivors know the real truth and Of course, if nobody participates there will be Since there is no money (except mine) and my The survey will probably comprise a simple Since this is a low cost survey, I can't accept Please send general questions to the group Please, Please Please use the title: Tell your doctors, tell your consultants, Regards, PS: Dont lose this chance to make a difference.
Link: http://health.groups.yahoo.com/group/Legionnaires_diseaze_support_group/
203.218.106.187
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International Legionella Rehabilitation Survey
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There is a very little literature or information
on the subject of techniques for surviving and coping with Legionnaires disease and even less money to fund it.
much data to make recommendations for their
patients, hopefully this survey will change that
situation.
comments, express your needs or other requirements, etc. No real names will appear in
the results, and it goes with saying all information will remain confidential.
have the experience. I am hoping this survey
will discover useful hints and tips from
various parts of the world that can be shared
for the benefit of everyone.
no results. I am an engineer by trade, so I will buy the software, math is no problem, however once I have assessed the response I may try to encourage a university or other institute to help, which MAY require that institute reviewing copies of your medical records (sent at your own expense).
spare time, the survey will be emailed. It will take time to compile, conduct and report, so please don't expect results overnight.
questionnaire asking basic questions about health
before and after, medications, exercise, diet, etc.
a qualified acceptance; by that I mean a person
that wants to do bits of the survey. Qualified
acceptances would be classed as No, I simply
dont have the resources to handle too many
variables.
or my private email address: deepcastle (at) hotmail.com
International Legionella Rehabilitation Survey (ILRS)
tell anyone that will listen 
I encourage you to participate - Hoping for
overwhelming response.
John Herbert
