Please post messages here to each other or ask a question about a medication or treatment. Please remember to check with your doctor first before you try any treatment. Visit us in chat at http://www.friendswithms.com/mschat.html or join one of our email newsgroups. Thank you, Veronica Davidson
Posted by Veronica
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on 5/12/2007, 3:56 pm, in reply to "Changes w/LDN"
72.78.177.179
Your not the first person i've heard say this. I know of one lady who went down hill really fast after a few good months on LDN. She then got so bad that she was confined to a wheelchair and had to do chemo. She swears now she'll never do LDN again and warns people not to use it. Then we have a man nick named TEE6 whos wife was on LDN for a good year at least. SHe had some improvements while on it for that year but then progressed so severely that she could no longer transfer herself and is now bedridden from what i understand.
I know of a 3rd person a man who was on LDN who had limited mobility in his arms while on LDN and thats it. He later passed away because he progressed so rapidly. They said he had a very rare extreme case of fatal MS. His lungs were so badly effected that he was unable to breath after awhile.
My neurologists refuses to put me or any of his patients on LDN for these simple facts, there are no studies to prove or disprove any improvements that may or may not occur from taking it, LDN is damaging to the liver and can cause complete liver shut down, and LDN is known to have a placebo effect in most people who take it. Meaning you feel as if your getting better or improving but its a state of mind thing. There are no real improvements.
Knowing the down side to LDN from people I've known for years I can honestly say i would never recomend LDN to anyone. Not even as a last resort. You only have one liver plus from what i've seen you're improvements if any are short lived and then you plunge down hill faster than you can say LDN.
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