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Posted by Becky
on 6/1/2008, 10:30 pm
Gif Gal
Hi Everyone,
I sure do miss Sue. I remember the last time she was around she was talking about all the remodeling they were doing on the house. I wonder what happened? It has been nearly a year now since anyone has heard anything from her.
Well, thanks to all who answered my last post. I am doing alright. I am so busy with my two boys, both of them are teenagers now (13 and 14). I am still homeschooling them and it sure does take a lot of out me. Sometimes when I sit on the couch to watch TV, I fall right to sleep. I am doing more, but still don't have the stamina I need to keep going day after day. I have to have days where I rest.
I went to see my bowel doctor (Dr. Mills) in May. My stoma has prolapsed a bit and I have diversion colitis in the part of my bowel that is not connected. All in all, I am normal and the only way to fix both problems is to have the surgery to reconnect. So I told Dr. Mills that I will come back in August (that will make it one year since getting the colostomy). My other doctor, Dr. Brown, up north said I should wait a year before getting the surgery to reconnect. He is a very smart man so I am going to listen to him. Dr. Brown wants me to have my reconnection surgery with Dr. Mills because he is more experienced. I asked Dr. Mills how well do I have to be to have surgery and he said that as long as I can walk and climb stairs I am ready. He said that he does surgery on people sicker than me and they do alright. He told me the best thing I can do to get ready for surgery is get some exercise to increase my lung capacity. Once the boys get out from school I will try to concentrate on walking.
Part of me is scared to have surgery and part of me is looking forward to it. It will be nice to have my colon back inside my tummy where it belongs, but Dr. Mills did say that sometimes after reconnecting the bowel they give patients an ileostomy. He said that he doubts that he will have to do that to me. When he told me that it caught me off guard. I will ask him more about that when I see him in August. I really don't want to have an ileostomy as that would mean I have to have another surgery to put my intestine back together.
I am still keeping in touch with Dr. Cook. Oh, has anyone heard of Naltrexone? A friend of mine had surgery at the CEC in April. She is now going to a gyn that believes endo is an immune system problem. He prescribed her Low Dose Naltrexone (LDN) which is supposed to boost the immune system. I am going to be asking Dr. Cook about it when I talk to him tomorrow. If you have heard about this therapy let me know.
Hugs,
Becky
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