ENDO SUPPORT FORUM : Update 6 months worth

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If you wish success in life, make perseverance your bosom friend,
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Update 6 months worth

Posted by Jess on 1/16/2008, 11:08 pm

Hi all,

It has been a long time since I have been on here. I have had a lot of things happen and have not really been up to talking to people. My up beat attitude that I have had all these months went away for awhile and I became depressed. So needless to say, we had to deal with that on top of everything else.

In November I had botox injections to my pelvic floor which were supposed to relax it and stop the spasms. We'll it did quite the opposite it made it in constant spasm and tighter than it was before.My grandmother jokes with me that at least I don't have any wrinkles down there anymore lol.My pain situation is not any better and lately it is starting to get worse. My obgyn will not operate on me, so all my docs are collaborating and they are sending me to a local gyn oncologist. They believe that he will be able to manage my case because it is so darn complicated.

Let's see what else. My ovaries are huge and are filled with cysts and on my left side my ovary and cysts are so huge that you can feel them by pressing on my abdomen. THey are going to have to go in and take care of it. I have had a CT, MRI, and a pelvic ultrasound and they cannot absoultely decide what is going on.

My doc has not tried to take away my pain meds, but she has not increased them at all either. She says that we need to figure out what is going on and take care of the problem. I went to the colo-rectal surgeon who is also a general surgeon and he is leaving for Iraq today. God bless our troops. I just wish that they would leave my doctor alone, this is his fourth time leaving the practice for a tour of duty since I have been seeing him since dec of 05. He says that my only option for my bowel is a colostomy and I am trying totally to avoid that.

In regards to my ever non functioning bladder, I stopped voiding anything on my own after the botox injections for about two months. I am just recently getting to void a little on my own. My colo is not sure what is going on but offers me no alternatives. My uro wants me to try an interstim or to get a cituit.

I was talking to my pcp who believes like me that part of my problem now is endo and adhesions. That old familiar feeling is back, we'll it never really left, but it is much worse now and is controlling my life even more. They are going to have to do something surgically about it, even though I don't want it to come to that. Do guys realize that my last real surgery was in Dec of 06. I have been off the operating table basically, for over a year and I am not looking forward to going back. I am so scared of them going in and hitting my bowel and me ending up with a permanent colostomy. We'll sorry that this is so long, thst is what about 6 months of not writing will do to you. I hope all is well on this board, you all have been in my thoughts and prayers especially you Kristy, Kris, Sue and Becky. Take Care and God Bless one and All.

Jess