Posted by Iris Any help would be much apprieciated, I just had shoulder surgery a month ago and have tons of time to talk/brainstorm while re-cooping. Even if you do not live in Oregon, suggestions are welcome. Cheers, IRIS
on 1/17/2005, 5:27 pm
Message modified by board administrator 4/17/2005, 1:23 pm
I have EDS type III and have been trying to find some sort of support system whether it be people suffering themselves or the caretakers of people suffering from any type of EDS. There seems to be no pinpointable group in my wonderful city of Portland, let alone Oregon. I tend to lean towards a humorous and positive approach but have no problem with having a, or being, the empathetic ear to our sometimes excruciating gumby like tendoncies(pun intended). I know it is hard to stay positive, I just had a good laugh with my doc today about the possibility of being cured in a hundred years or so, but some help keeping my head up would be great. I can only bond with my older brother so much before he derserves a good arm twisting(kidding, only kidding).
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