Posted by krista
on 2/24/2005, 9:30 am
151.148.144.102
I stumbled across this sight...WOW! after reading about everyone I am truly amazed! what strength you have. I understand the frustration and and dometimes very emotional helpless feelings. I have a microadenoma. Although it is a small pit tumor. It has caused many a doctor confusion. I do not respond to parlodel or to dostinex. I have taken pretty high dosages of both. The meds will start to work and then it's almost like I become immune to it. I've had a variety of tests to confirm and double confirm that I really do have a oit tumor and that it is really a prolactinoma. All conclude yes. I have been diagnosed correctly. I was diagnosed 5 years ago just after getting married. My husband is so supportive and positive. He's great! although, sometimes I think it is hard for him to truly understand. It's frustrating to go to doctor after doctor and they eventually say the same thing... your an anomaly. I have looked into surgery, the surgeon had some reserves about it because it is so small. It's hard to understand how something so small could cause such HUGE problems! I would love to start having a family....(have wanted to for 3 + years) Does anyone know of any new treatments? or has anyone been through something like this?
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