Posted by LP Since then it has been an uphill battle. My most major frustrations are: (1) I lost all vision except for 50% of my left eye and a small dot in my right. I was told immediately after surgery that my eyesight would return within six months. Not true of course. (2) On-going struggle with regulating the endocrine system without the master gland. (3) and Major headaches to name just a few. I have yet to find a doctor who will treat me based on how I feel without reverting back to the blood test charts. I have been told one too many times that "You are in range. Congratulations!" when I feel awful. I may even feel better when one of my hormones are out of range but that seems to fall on deaf ears. I find that most endocrinologists don't know what to do with someone who has issues with their entire edocrine system. I call it the Metabolic Nightmare Syndrome. As far as medications go I take the usuals. Dostinex, Growth Hormone, Synthroid, Prednisone, DDAVP and various Pain Medications for on-going headaches. To be honest this is the first time I have ever discussed my illness on a message board and obviously I have a lot to say.
on 11/1/2006, 5:35 pm
68.53.0.147
I was diagnosed with a prolactinoma in June 2002 and had a craniotomy in January 2003. This January it will be fours years post surgery. It was a macro that incased the coratids, attached itself to the optic nerves and invaded the sinus cavity. The tumor was debulked and the pit gland was removed. After surgery I had major complications as well as five weeks of radiation treatments and a total of 3 1/2 months in the hospital.
So I guess my question is.....Are there any of you out there who have had their entire Pit Gland removed? I would love to compare notes. 
*Appologies for any mis-spelled words. I have a hard time catching them.
Message Thread:
« Back to thread