Posted by Mrs.KRG
on 7/30/2012, 11:01 pm, in reply to "Re: My Daughter is having Pierre Robin Problem,"
115.242.8.149
Mr. Sachin,
My daughter is also born with PRS. Please do not panic in the first place. Your daughter needs extra care and panicking doesnt help. You can procure the Habermans feeder through ebay or through amazon.com and feed her using it. I am using it and it has proven really helpful. My daughters weight gain has also been good. as for making her sleep, you can just prop her up using additional pillows so that her tongue doesnt fall back. make sure to burp her out everytime she feeds. you need to understand the babys condition and act accordingly thats it. the kids can be treated as normal kids and do not see them as some thing abnormal. I have got a wonderful paediatrician and he helps us with all kinds of questions we have.
all the best with your daughter.
--Previous Message--
: Hello, Sachin.
:
: How are you?
:
: I want to let you
: know that I sent
: you an email with
: some medical information
: about my Craniofacial/
: Cleft Surgeon (Dr. Kenneth
: E. Salyer) & the World
: Craniofacial Foundation
: (http://www.worldcf.org)
: which will be helpful
: for your daughter.
:
: Sincerely,
:
: Georgette Couvall
:
: WORLD CRANIOFACIAL FOUNDTION ON FACEBOOK:
: http://www.facebook.com/worldcf/
:
: --Previous Message--
: Dear Sir/Madam,
:
: My Daughter is Born on 30/05/2012 she having
: Pierre Robin Problem please help me to Take
: Better Care of her.
:
: She has below problems:
: Cleft soft palate
: Jaw that is very small
: Small opening in the roof of the mouth,
: which causes choking
: Tongue that is small in to Mouth as compare
: normal
: Breathing difficulties, especially when the
: She sleeps
: Mainly Feeding difficulties
:
: Please Help me for my child….
:
: Regards,
: Sachin
:
:
:
:
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