My name is Ian Koreng from Papua New Guinea, after searching for advice and information I found this address through the internet search, My wife just given birth to a beautiful daughter, she turned 1 month yesterday, I took her to the hospital just early this week and was told by the doctor that she has Pierre Robinsons Syndrome, Ive never heard of this syndrome before, and hoping to get much information and advice if possible, my wife is currently feeling distress about this information from the doctor, there are lot of question that we have but could not get much information as we can from the doctors and we were advice that this is a rare case in PNG, so Im hoping if anyone can give us advice on the next cause of action that we can take, please please I REALLY need your help advice or anything possible, eg if there is a specialist who can help save our baby daughter to enjoy life at its fullest,
Your prompt response into my need will be much appreciated,
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