Hello, im naomi.. my 8year sister was born with pierre robin syndrpome, she has had many operations to try and sort her tounge, mouth and lungs. as she has got older her problems have started to get slightly worse, my sister has very bad breathing difficulties and talking difficulties. i was wondering if there is any charities in the u.k that can help children with prs that me and my school can raise money for? thanks so much. naomi.
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