Posted by Melinda
on 5/18/2012, 5:01 pm, in reply to "Re: effects of pierre robin/sticklers"
70.225.237.67
Thanks Marisa. Sure hope that is all it is. I was always tiny too but she is so little and has hardly had any growth to speak of it make me worry. I talked to the genetics dr. and he said I could always see an endocrinologist if I was concerned so was wondering if that is something I should think about doing.
--Previous Message--
: Hi Melinda!
:
: I was born with PRS in 1983. At her age I
: think I was about the same as your girl is
: now. I didn't really have my pre-teen
: growth spurt til 12-13 years of age. I know
: it stinks being the shorter one in class,
: but unfortunately everything happens in its
: own time and everyone is different. I have
: never heard of PRS affecting growth in that
: manner before. And if the geneticist isn't
: concerned about it being PRS related I
: wouldn't be too concerned. You can always
: ask her pediatrician and see where she is
: percentile wise as opposed to others her
: age. They would definitely know more than
: anyone if she is where she should be height
: wise. But on a height note. I went from
: being under 5' tall to being almost
: 5'6" tall, most of the final growth
: didn't happen until I was 16. I hit
: 5'2" in elementary school, and then the
: last 4 inches over the course of the
: following 4-5 years. Did not hit almost
: 5'6" til I was 19 years old. Just tell
: her to hang in there, she shoot up like a
: bean sprout one of these days.
:
: marisa
:
: --Previous Message--
: My daughter is now 11 years old and doing
: great, but is very tiny! She is only
: 52" tall and hasn't grown a whole lot
: in the last year. I was just wondering if
: anyone else has that issue? I talked to the
: genetics dr. and he said that he doesn't
: think it has anything to do with the PRS. I
: think she's cute the way she is but at 11
: she sure hates it! Didn't know if it has
: anything to do with her PRS or sticklers so
: was wondering if its something I should
: research further! Thanks
:
:
:
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