Posted by farrah
on 2/27/2012, 3:08 pm, in reply to "Re: New to all this - 15 day old baby with PRS"
159.14.241.230
Hi Janice,
Did both your babies get any surgical intervention for their PRS? My son is 2 1/2 weeks old and born with PRS. Might have to do surgery to help with his obstructing.
Glad your two are both doing good.
--Previous Message--
: Hi Janice,
:
: Just saw your post and wanted to say hang in
: there! It really sucks bit it does get
: better! I have a 20 month old and a seven
: month old, both of which have prs. We were
: the same as you with our first and the first
: few months are a whirlwind of information,
: appointments and adjustment but it really is
: worth it. The biggest thing I have taken
: from it is what amazing kids we have! It can
: be a terribly isolating condition in the
: fact it's not widely known about but the
: main thing is it's fixable and most people
: will never know they are any different! Try
: and use all your resources and make sure you
: are fully informed about all aspects of the
: condition! Feel free to contact me and ask
: any questions!
:
: Good luck and congratulations on your new
: little bub!
:
: --Previous Message--
: Hi there, my daughter was born on 5/31/11
: and
: diagnosed with Pierre Robin that day. She's
: still in the NICU trying to get a handle on
: eating and breathing and she'll likely be
: there for a few more weeks.
:
: Just looking for any advice or words of
: wisdom! This has been so hard on us all (we
: have a son who will be 3 tomorrow) and I'm
: dying for her to come home!
:
:
:
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