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5 YR OLD SON DIAGNOSED W/ PIERRE ROBIN SYNDROM AT BIRTH.
Posted by NICOLE on 1/6/2012, 10:04 am
MY SON WHO IS 5 NOW WAS DIAGNOSED AT BIRTH. HE HAD A MANDIBULAR EXTRACTION IN JANUARY 2010... WE THOUGHT HE WAS OK NOW.. HE STILL HAS SEVER SLEEP SOMEWHAT WHICH CH WAS SUPPOSED TO BE CORRECTED BY THE EXTRACTION BUT WAS NOT. WE ARE NOW FINDING OUT THAT HE MAY HAVE A BONE DISORDER. HE BROKE HIS FEMOR IN AN UNUSUAL PLACE 2 WEEKS AGO. WHAT TO DO. HE HAS HAD 22 SURGICAL PROCEDURES IN HIS SHORT 5 YEARS.
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