Hello, My 4yr old daughter was born with PRS. She had her repair done at 8 months of age and we started speech therapy when she was two, 2 xs a week. These past two years there has been tremendous growth in her speech ability. We learned this past summer that her palate is still too short though and will need to be lengthened. I am really not looking forward to her going through another surgery but I pray it will make it easier for her to speak where others can understand her better. When she was younger I almost always understood her because she spoke in tones ( that and her 1-2 yr old vocabulary was small) I found myself speaking different words in different tones-( for example- (high pitch)thank (lower pitch) you. So I knew what she was saying because I knew the tones for her words but everyone else was in the dark. Then when she was starting and going through her threes things became harder because she was learning a wide range of words that she could not say correctly and I could not understand. These past few months things have been getting much better a big part of that is because she is with a wonderful speech therapist who is working hard on placement of her tounge- (when she was younger it was alot of repeating sounds to help with building muscle strength in her face, jaw.) now we work alot on placement and that I see her working on, on her own. She still struggles with sounds and others like d,g is only placement work because until her palate is lengthened, she will be unable to make those sounds. As far as tips, Keep working with him, there will be harder days than others but try to not let him see your frustration- it can be very upsetting to kids to not be understood. We keep her homework on the fridge and try to go over it together daily maybe while playing with the magnets of while I am doing dishes, dinner ( she loves to be in the kitchen with me) Also don't be afraid to ask you speech therapist questions, I have found a wealth of information from ours.
: My son was born with PRS. He's now two yrs
: old, and hes having a very dificult time
: with his speach. Im wounderiing if anyone
: else has had this issue and if they have any
: insight, tips, or advise. thank you
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