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Re: Reflux & PRS
Posted by Pat Kamarata on 1/1/2012, 9:55 am, in reply to "Reflux & PRS"
My 1 1/2 yr old Grandson has the severe reflux. So frustrating. It is getting worse. He is getting so listless,oxygen concentric decreasing.I feel so helpless. I live in As and they are in DC. Any advice? |
: Hi All, I have a 1 year old PRS baby. She
: continues to reflux 2 times a day....and
: it's a huge huge spit up ....like a river of
: milk flowing out of her - her entire feed
: just comes out in one go. It's so
: frustrating to see it happen. Her entire
: face turns red, she's crying, gasping for
: breath, trying to clear her throat and
: coughing....just really tough to see her go
: through this half of her feeds every day.
: She's machine fed via a g-tube.
: We tried putting her on a 15% angle wedge
: but same thing happens. She keeps slipping
: on it anyways, so it's very tough to keep
: her stable on it. We tried putting her on an
: inclined chair but her g-tube started coming
: out and she spit blood from her mouth the
: day we gave her a feed on the chair and
: totally freaked us out, so we've stopped
: trying the chair.
: I was wondering if any of your children are
: also having massive refluxes and if you've
: found a solution?
: Your help is appreciated.
: Thank you
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