Pierre Robin Network Message Central
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Re: Femoral Hypoplasia-Unusual Facies Syndrome
Posted by diann on 12/28/2011, 10:37 pm, in reply to "Femoral Hypoplasia-Unusual Facies Syndrome"
: My daughter is one month old. She was
: diagnosed with PRS resulting from FHUFS...is
: there anybody else out there with this
: condition. She has recently underwent her
: jaw distraction surgery. I knew nothing
: about this prior to a month ago. My
: thoughts and prayers are with the parents
: and children going through.
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