: Hi my name is Jimmy. I am 27 years old. I was
: born with PRS. My Dr said it was so extreme
: that I wouldn't survive. I never could suck
: a bottle or swallow food. Until.. I was 6
: years old. I had alot of health problems
: from the day I was Born to now. As a child i
: was 2 Months early I wasn't expected to live
: those days. I was tube fed and heart issues.
: Mom and dad had a Dr from Russia Flown in to
: do the surgeries needed. I was at Mt
: Washington Hospital NICU for 9 Months. I had
: the palate Closed But had to have tube
: inserted in my stomach. The Dr said I
: wouldn't not be able to talk I was so bad
: that mom and family chose to take me off the
: Ventilator. I started to breath on my own.
: When I was strong enough they did the
: surgeries. But as the years when on I beat
: all the odd's To add to the pain I had
: clubbed feet. Ive had 13 Surgeries over the
: years. But I still have issue swallowing I
: Have to Drink large amounts of Liquid when
: eating food I have problems if im sick I
: can't vomit without having someone with me.
: If im sick which is very rare. But I still
: talk to my Dr I had when i was a little Kid.
: I't Made me stronger. He was only Pediatrics
: but after me He started to take adults after
: I turned 21. I have Beat the odds. But My
: one support line was my mom without her
: prayers and trust with a higher power I
: wouldn't be here today.But she passed away
: when i was 13 she lived 47 years with Pierre
: robin syndrome. I Didn't Find out until I
: read her letter to me. She kept it a secret.
: *I didn't want to tell you because I didn't
: want you mad at me. But right now you are
: mad at me for leaving* Sometimes Life isn't
: fair But we learn to manage and study PRS.
: To this day they are finding New ways to
: Heal and help. To the Young Kids Be strong
: .TO the babies Its a long road But when you
: make it You will feel later on in the years
: proud that you over came PRS. I Did it. You
: can. Oh Dont let the kids pick on you just
: because you look or talk or eat differently.
: Good Bless.
Thank you so much for sharing your story! I just had a grandson born with PRS and it is very, very hard right now. I am very happy that you are doing well -- Take Care and God Bless!
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