Posted by Jennifer
on 10/19/2011, 3:07 pm, in reply to "Re: jaw distraction at age 5"
98.18.38.82
Hi there! My brother was born with PRS and he is 18 now. He just had another jaw distraction this year. From what I have heard this is not very common in PRS, but I am not completely sure. He also just had to have his Tonsils take out this year due to the slight obstruction after the last surgery. T has undergone 7 distractions in his 18 years.
--Previous Message--
: Hi Lucy,
: A 2nd distraction is not an option because
: his jaw is in the correct place at this
: moment. Otherwise he get an overbite (hope
: this is the correct english word , but I
: mean that his lower jaw will be for his
: upper jaw) Another solution is to do put
: everything forward (upper and lower jaw) .
: But we won't do that. It's to risky. As
: long as his blood rates are good with the
: c-pap. We stay with it. Kind regards and
: good luck with the second distraction.
: Tanja
:
: --Previous Message--
: Hi Tanja, can I ask why a 2 nd distraction
: is
: not an option? Our son is due to undergo a 2
: stage distraction in a few weeks time. He is
: 2 and has a trachy.
: Lucy
:
: --Previous Message--
: Hello Lauren,
:
: Our son had a distraction when he was 3
: weeks old. But now at the age of 6 he still
: has severe obstructive sleep apnea. His
: addenoids and tonsils has been removed also.
: It did make things worse. To do a second
: distraction is not an option. He's on a
: c-pap while he's a sleep. The other solution
: for him would be a trach.
:
: Hope the tonsillectiomy is the solution for
: your daughter.
:
: Best regards
:
: Tanja
:
: --Previous Message--
: Hi everyone! I was wondering if any families
: had children with PRS that did not have a
: jaw distraction until their later years. My
: daughter Abby is 5 now and was very recently
: diagnosed with severe obstructive sleep
: apnea. Her ENT is removing her tonsils in 2
: wks but said that if she is still
: obstructing that we need to see an
: orthopedic surgeon for her jaw. Her jaw
: looks beautiful compared to when she was
: smaller but I'm not too familiar with the
: process. Has anyone had this happen to them?
:
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