Posted by Brenda
on 10/9/2011, 3:03 pm, in reply to "Re: Haberman bottles"
198.228.225.221
First of all it is good that they found out before birth. Depending whether or not the baby has the sequence or syndrome there's a lot to understand & learn. The Internet is amazing & also call the cleft palate foundation right away they will send you tons of information about feeding, care, & specialists. She should find a really good experienced hospital to deliver at. You can help by calling too. CPF's # is 1-800-242-5338 they'll have you leave a message & then call you back. There's another site you can find parents on & talk to through Peirre Robin Sequence on Facebook.
PRS is scary. Our daughter nearly died because no one caught it, even after 3 hospital stays. Amazingly we got to the right hospital & they were able to diagnosis her & perform
corrective surgery. Some babies don't need surgery just depends on severity of the breathing problems. If you would like to talk to me or need support e-mail me directly & I will give you my phone number. There is a light at the end of the tunnel. She will need all the support she can get. God bless.
--Previous Message--
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: --could you please help me understand
: prs...my daugher n law is 6 months pregnant
: and we just found out 10/6/11 that the baby
: has prs...the dr
: share a little light but still uncertain due
: to this is a rare symdrone... where did this
: come from???
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