: Hi All, I have a 1 year old PRS baby. She
: continues to reflux 2 times a day....and
: it's a huge huge spit up ....like a river of
: milk flowing out of her - her entire feed
: just comes out in one go. It's so
: frustrating to see it happen. Her entire
: face turns red, she's crying, gasping for
: breath, trying to clear her throat and
: coughing....just really tough to see her go
: through this half of her feeds every day.
: She's machine fed via a g-tube.
: We tried putting her on a 15% angle wedge
: but same thing happens. She keeps slipping
: on it anyways, so it's very tough to keep
: her stable on it. We tried putting her on an
: inclined chair but her g-tube started coming
: out and she spit blood from her mouth the
: day we gave her a feed on the chair and
: totally freaked us out, so we've stopped
: trying the chair.
: I was wondering if any of your children are
: also having massive refluxes and if you've
: found a solution?
: Your help is appreciated.
: Thank you
« Back to index
If you would like to join our email group, please check out our home page at www.pierrerobin.org and follow the instructions there. We would love to have you.