hi.. my little boy was born on 13/07/11 he was diagnosed at birth of having prs ..i was devastated and dont know much about the sequence..my baby is now 2 weeks old and still in hospital, he is so beautiful and content baby..i know there will be hurdles, good days and bad days,,could you please help me ..share your experience with me..what can i expect..how can i help my baby..my baby is being fed via a nose tube...at the moment which upsets me..i have been very emotional over the past 2 weeks..and want to do everything i can and give my baby the best possible start in life..can you suggest any helpful tips or help regarding prs
: My daughter was born with Pierre Robin two
: years ago and she is the most amazing little
: girl! If you would like to "talk"
: post your email and I would be happy to
: share our story with you. It will all be a
: distant memory soon and you will have a
: happy and healthy little baby!
: --Previous Message--
: Hi there, my daughter was born on 5/31/11
: diagnosed with Pierre Robin that day. She's
: still in the NICU trying to get a handle on
: eating and breathing and she'll likely be
: there for a few more weeks.
: Just looking for any advice or words of
: wisdom! This has been so hard on us all (we
: have a son who will be 3 tomorrow) and I'm
: dying for her to come home!
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