Posted by annie turner
on 7/5/2011, 7:44 am, in reply to "Re: prs"
62.31.20.165
thanks again for a quick response offyou maxi is my grandason i go on all the web sites aboutprs maxi,s mum does,ent like to so i relay all the messages which makes her feel alot better especially about he,s eyes i ca now tell her about the gtube thanks again x
--Previous Message--
:
: My daughter had the g tube put in at 2
: months! I personally love it better than the
: ng tube. It doesnt get in the way like the
: other one and i dont have to insert thia one
: like i had to with the ng tube thru her
: nose. My daughter also has a cleft pakate on
: her soft palate. She will be having surgery
: this december to repair she will be 10
: months old. They only agreed to do that
: since we are moving back to texas a month
: after that and she has a great plastic
: surgeon here so he wanted it done here. My
: daughter also had the jaw distraction when
: she was 2 months old it was emergency
: surgery after she had her g tube surgery she
: stopped breathing so it was needed. Ever
: since they brought her jaw out she been
: doing amazing! I am sure ur son will come to
: love the g tube over time! I didnt like the
: idea o it either but it is so much better
: for the baby!
: --Previous Message--
: thanks again 4 ur reply has your baby got a
: cleft palette maxi has a soft cleft palette
: they say they will operate whn he is aabout
: 12 months and also they may put a
: gastroscopic tube in when he is 6 months my
: son his not happy about that do u know any
: one who has onex
: --Previous Message--
:
: That is amazing! So glad he is gaining that
: is always great news w prs babies! Also
: congrats on the breathing tube coming out
: those are always great days! I hope he
: continues on the road to good health!
: --Previous Message--
: thankyou for your reply ifeel a better
: having
: read your message he managed to put on 10
: ounces last week after having he,s breathing
: tube out x
:
: --Previous Message--
: yes my daughter was the same way at 12
: weeks.
: she had the ng tube until she was 2 months
: old and breathing issues, she had an apnea
: monitor and after her gtube surgery she
: would stop breathing because of her tongue
: bstructing her airway they did a jaw
: distraction where she has screws and plates
: on her jaw to move it forward. it has since
: moved her jaw completely forward and she is
: breathing so well she does not have the
: apnea monitor anymor eshe sounds completely
: normal breathing wise. she was also able to
: take a bottle better after they fixed her
: jaw. she goes weds to get the plates and
: screws out. my daughter didnt focus her eyes
: very well until recently and she is almst 5
: months old. it could be sticklers syndrome
: they usually check prs babies for it after
: birth. my daughter does not have it but she
: used to go cross eyes alot but it corrected
: itself over time!
:
: --Previous Message--
: my grandson is 12weeks old he as a feeding
: and
: breathing tubes he still does not focus and
: he,s eye ,s wander quite a bit just wondered
: if any other baby as got similar traits
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