Pierre Robin Network Message Central
[ Post a Response | Pierre Robin Network Message Central ]
Posted by annie turner on 7/4/2011, 3:43 am, in reply to "Re: prs"
thankyou for your reply ifeel a better having read your message he managed to put on 10 ounces last week after having he,s breathing tube out x |
: yes my daughter was the same way at 12 weeks.
: she had the ng tube until she was 2 months
: old and breathing issues, she had an apnea
: monitor and after her gtube surgery she
: would stop breathing because of her tongue
: bstructing her airway they did a jaw
: distraction where she has screws and plates
: on her jaw to move it forward. it has since
: moved her jaw completely forward and she is
: breathing so well she does not have the
: apnea monitor anymor eshe sounds completely
: normal breathing wise. she was also able to
: take a bottle better after they fixed her
: jaw. she goes weds to get the plates and
: screws out. my daughter didnt focus her eyes
: very well until recently and she is almst 5
: months old. it could be sticklers syndrome
: they usually check prs babies for it after
: birth. my daughter does not have it but she
: used to go cross eyes alot but it corrected
: itself over time!
: --Previous Message--
: my grandson is 12weeks old he as a feeding
: breathing tubes he still does not focus and
: he,s eye ,s wander quite a bit just wondered
: if any other baby as got similar traits
If you would like to join our email group, please check out our home page at www.pierrerobin.org and follow the instructions there. We would love to have you.
Hosted for FREE by Boardhost.
Create your own free message board!