Pierre Robin Network Message Central
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Re: New to all this - 15 day old baby with PRS
Posted by Debbie on 6/20/2011, 11:33 am, in reply to "New to all this - 15 day old baby with PRS"
My daughter was born with Pierre Robin two years ago and she is the most amazing little girl! If you would like to "talk" post your email and I would be happy to share our story with you. It will all be a distant memory soon and you will have a happy and healthy little baby! |
: Hi there, my daughter was born on 5/31/11 and
: diagnosed with Pierre Robin that day. She's
: still in the NICU trying to get a handle on
: eating and breathing and she'll likely be
: there for a few more weeks.
: Just looking for any advice or words of
: wisdom! This has been so hard on us all (we
: have a son who will be 3 tomorrow) and I'm
: dying for her to come home!
If you would like to join our email group, please check out our home page at www.pierrerobin.org and follow the instructions there. We would love to have you.
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