Pierre Robin Network Message Central
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New to all this - 15 day old baby with PRS
Posted by Janice on 6/15/2011, 7:48 pm
Hi there, my daughter was born on 5/31/11 and diagnosed with Pierre Robin that day. She's still in the NICU trying to get a handle on eating and breathing and she'll likely be there for a few more weeks.
Just looking for any advice or words of wisdom! This has been so hard on us all (we have a son who will be 3 tomorrow) and I'm dying for her to come home!
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