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Re: mental illness with pierre robins

Posted by stefanie on 3/7/2011, 12:40 pm, in reply to "Re: mental illness with pierre robins"
70.142.32.250

I have a 13 year boy. We have gone to countless counselors for problems but never a diagnosis. Going today once again for dr to get referral to nuerologist. to have brain scan don't know what else to do. Courious about your reseach. thank you.

--Previous Message--
: Hi, I'm a genetic researcher currently
: studying pierre robin syndrome patients.
: Our lab has recently found a candidate gene
: for this syndrome, and would like to gather
: more patients for screening of this gene.
: It will be beneficial for future therapy.
: Do you know where can we gather volunteer
: for this study?
: Thanks before,
:
: --Previous Message--
: Laurie, I have a 6 year old granddaughter
: that I have raised since birth, She has
: PRS, and has major medical problems. She
: has also been diagnosed with Episodic Rage
: Discontent. It started when she was about 3
: years old. Finally going to be able to see
: a geneses dr in a few months and hopefully
: will get some answers. Jessica has pulled
: out her trach or her G tube, puled out fists
: of hair, bites and generally will hurt
: herself or anyone around her. She is on
: Abillify, and Trileptol, and I also have
: valium for her when she has a major episode.
: Jessica was just a case study patient at
: our local childrens Hospital and that is why
: now we may finally be getting answers. They
: have not wanted to diagnois her with BiPolar
: due to her age. I was also given Chloral
: Hydrate, what they give you to put you to
: sleep for surgery but never used it with her
: already having a comprimised airway to start
: with. Does your daughter take meds and if
: so what?? At the case study they told me
: that they really had not heard of any
: children with PRS having the mental issues
: that she has. We live in Virginia, where
: are you at??
:
: --Previous Message--
: My daughter is 14 with PRS and suffers from
: a
: variety of mental problems from adhd, bi
: polar and oppositional difiance disorder. I
: was wondering if any other PRS children have
: been diagnosed with similar issues? Just
: trying to find some root that might give us
: some direction for her future. Thank you.
:
:
:
:
:

Message Thread

mental illness with pierre robins - Laurie 1/18/2011, 9:34 pm
- Re: mental illness with pierre robins - Patricia 1/22/2011, 9:23 pm
  - Re: mental illness with pierre robins - Mimi 3/2/2011, 11:47 pm
    - gratis traductor - mmwkgt 2/26/2012, 5:02 am
    - Re: mental illness with pierre robins - stefanie 3/7/2011, 12:40 pm
      - Re: mental illness with pierre robins - Jessica 6/8/2011, 6:10 pm
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--Previous Message-- : I have a 13 year boy. We have gone to : countless counselors for problems but never : a diagnosis. Going today once again for dr : to get referral to nuerologist. to have : brain scan don't know what else to do. : Courious about your reseach. thank you. : : --Previous Message-- : Hi, I'm a genetic researcher currently : studying pierre robin syndrome patients. : Our lab has recently found a candidate gene : for this syndrome, and would like to gather : more patients for screening of this gene. : It will be beneficial for future therapy. : Do you know where can we gather volunteer : for this study? : Thanks before, : : --Previous Message-- : Laurie, I have a 6 year old granddaughter : that I have raised since birth, She has : PRS, and has major medical problems. She : has also been diagnosed with Episodic Rage : Discontent. It started when she was about 3 : years old. Finally going to be able to see : a geneses dr in a few months and hopefully : will get some answers. Jessica has pulled : out her trach or her G tube, puled out fists : of hair, bites and generally will hurt : herself or anyone around her. She is on : Abillify, and Trileptol, and I also have : valium for her when she has a major episode. : Jessica was just a case study patient at : our local childrens Hospital and that is why : now we may finally be getting answers. They : have not wanted to diagnois her with BiPolar : due to her age. I was also given Chloral : Hydrate, what they give you to put you to : sleep for surgery but never used it with her : already having a comprimised airway to start : with. Does your daughter take meds and if : so what?? At the case study they told me : that they really had not heard of any : children with PRS having the mental issues : that she has. We live in Virginia, where : are you at?? : : --Previous Message-- : My daughter is 14 with PRS and suffers from : a : variety of mental problems from adhd, bi : polar and oppositional difiance disorder. I : was wondering if any other PRS children have : been diagnosed with similar issues? Just : trying to find some root that might give us : some direction for her future. Thank you. : : : : : : :

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