Posted by Sheila Keels
on 1/15/2011, 8:06 pm, in reply to "Re: More than one baby with Pierre Robin"
76.125.28.9
My daughter Tabetha born with PRS on 1/23/1981 She has given with to five children three without- two with PRS so yes It a genetic factor.
--Previous Message--
:
: I will tell you - 16 years ago I had a
: daughter with PRS. 20 mos later we had a
: perfect baby boy. It was not until 2 years
: ago that we found out I was the genetic
: factor in all of this - I held the mutation
: as well as passed it to our daughter. I
: urge you to have the genetic testing...if
: your doctor is not aware, we had our testing
: done at Childrens Hospital of Philadelphia.
: I'm sure if they were contacted they would
: be able to instruct you further. It's an
: AMAZING facility.
: --Previous Message--
: Hi,
:
: I was just wondering whether any of you have
: given birth to more than one child with
: Pierre Robin Sequence. In March this year I
: had a termination for medical reasons at 18
: wks because our son had an extreme case of
: micrognathia. The autopsy showed Pierre
: Robin Sequence but no other abnormalities
: and the geneticist doesn't suspect a further
: syndrome. I'm now 10 wks pregnant and am
: worrying about it happening again. What are
: the chances of this? We live in the UK and
: info about this condition is very scant.
: Could I have caused this?
:
:
:
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