I agree that you should not blame yourself. My daughter was born in 1994 (she is soon 17) with PRS. At the time, we had no idea. I blamed myself also. It wasn't until a follow up visit to CHOP in Philly and a wonderful genetics team tested us that we found out it was a genetic abnormality that caused the PRS. It's not necessarily the reason every time - sometimes it just happens. Just remember, everything in life happens for a reason. Enjoy your child and everything that comes with being a mother!
Lots of good wishes for you!
: Hey Valerie...
: Please don't beat yourself up about this!!
: It is only natural that we as moms feel
: responsible and to blame ourselves. I did
: too in the begining. I went through the many
: stages of grief those first few months. I
: went through blame, denial, anger and
: finally acceptance. Nothing you did caused
: this. I finally got to a place where I was
: "this isn't about me..this is about my
: kid, this is her journey and her
: struggle". I needed to quit blaming
: myself so that I could stand up for her and
: help her through this. Once I hit that
: spot, it was much easier to deal with. Just
: try to concentrate on helping your baby and
: being his/her advocate. Things are really
: tough in the begining, but they do get
: better!! There is a light at the end of the
: tunnel, and it is not a train coming at
: you!! My daughter Kate is now almost 3, and
: she is healthy, happy little girl doing
: everything she is supposed too! I would be
: glad to chat with you by email and answer
: any questions you have or just listen to you
: vent. I could also send you some pics of my
: Kate. Hang in there girl!!
: --Previous Message--
: Hi Valerie
: Please dont blame yourself for your child
: having PRS, it did not happen because of
: anything you did or did not do. my pregnancy
: was 100% planned, i took prenatal vitamins
: before i knew i was pregnant, i have not had
: any drugs, alcohol, or cigarettes in over 8
: years, and there is no history of prs in
: either side of the family. It just happens.
: please dont be hard on yourself for it.
If you would like to join our email group, please check out our home page at www.pierrerobin.org and follow the instructions there. We would love to have you.