Pierre Robin Network Message Central
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Re: fear and anxiety in anticipation of birth of child with Pierre Robin sequence
Posted by Holly on 1/3/2011, 5:45 pm, in reply to "fear and anxiety in anticipation of birth of child with Pierre Robin sequence"
Hey Chris.... I would be very glad to chat with your daughter by email. I understand how it is to have this happen to you. I think what she is going through now is normal. It can be frightening and overwhelming to say the least. Once she is feeling better, she should start doing some of her own research and finding a plastic surgeon. She could go ahead and meet with them and ask questions. I have lots of other suggestions, but will email them to you if you want. Hang in there guys!!
: My daughter is around 20 weeks pregnant and
: has been told her baby has a bilateral cleft
: lip and cleft palate and a significantly
: small chin. She is quite overwrought,
: having trouble sleeping, crying and very
: worried that she will not have the strength
: to meet the needs of the child. She is also
: very worried about all the procedures and
: pain that the child will have to endure. Can
: you offer any encouragement?
If you would like to join our email group, please check out our home page at www.pierrerobin.org and follow the instructions there. We would love to have you.
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