Posted by kyla
on 12/14/2010, 8:39 pm
204.85.253.253
My son was born 9/4/10 with PRS. We opted not to have jaw distractors and b/c nasal trumpet worked for him he didn't require trach. Chin has grown alot since birth, but still not enough to where he can support his airway w/o nasal trumpet. So far we don't know of anyone or any doctors in the us who have used this approach. We had a 42d NICU stay and he is at home. He recieves care at a large medical center in NC with a really great craniofacial team. We feel like our son is somewhat of a pioneer, it would be great though to talk to someone who knows what we are going through :-) Any help would be appreciated! thanks, Kyla
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