My daughter had her repair 1.5 years ago and her surgeon does not require no no's or bottle/pacie restrictions. It made life a lot easier, because we did not have to take any of her comfort items away or restrain her. We gave her larger toys to play with that she couldn't put in her mouth. She took her haberman and pacie in the recovery room and did just fine. We also steered clear of any narcotics as they make her very agitated/ nauseated and not sleep. She got iv ativan for the first 12hours after surgery and tylenol/motrin rotated every four hours for the first two weeks. We had the stronger stuff on hand in the hospital and at home, but never had to use it. Room temp liquids are the best. It took about a week before she would take her formula again. She was taking her baby food in bland flavors like sweet potatos and bananas on day two. She did the best with this surgery. The first 12-24h are a little rough becuase of the after effects of anesthesia, but after that it was fine. Good luck!
: My daughter wore the No nos for the nurse, for
: she also had jaw distraction removal at the
: same time. But her Dr was fine with things
: going in the mouth..Just go with your gut.
: We kept them on at home and watched her
: closely when they were off, but like I said
: her surgeon did't require them, for just the
: cleft palate repair.
: Hope it helps
« Back to index
If you would like to join our email group, please check out our home page at www.pierrerobin.org and follow the instructions there. We would love to have you.