I have a two year old daughter with chromo. 16 q del. She was born with a small chin and cleft palate. She was ng tube fed at birth then a g tube was placed.She had the jaw distraction at 11 months then cleft palate repair. She still has the G tube, I just want to add. Many people worry that the kid might loose their swallow. I just would like to share she hasn't eaten by mouth in two years. I still try everyday with a little food at the table with us. With a sippy cup she has never used, But at this point loves to chew on it. Your little ones might be small but the furture is going to shock you. The other day for no reason she began to pick up her sippy to chew and we all saw her suck. She loved that she can do this and drinks water from a non spill sippy in just a week.
Thought I would share, I thought I would never see it but there is light at the end of the tunnel.
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