My granddaughter was born with PRS Sept.3,2009 & as we have her Birthday party today I'm so thankful she has came so far in a year. She spent the first 3 months of her life in the hospital & came home with a trach & g-tube. On July 7th she had her palete surgery & on the 19th of August she got her trach out. I just want to say that PRS children & their parents are so strong & awesome. I thank the Lord everyday for giving her to our family. She is truly a gift from God. Take care
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