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Re: Baby Drew
Posted by Di-Ann on 7/10/2010, 8:39 pm, in reply to "Baby Drew"
: Baby Drew was born at 11:54 on March 8, 2010
: with PRS. He is currently in the NICU and
: having the usual (or as I have investigated)
: feeding issues. I have found, with no help
: from the doctors/nurses here, what he has
: and that he needs the haberman nipple. I
: live in the Washington DC metro area and
: really need to find one around here so that
: he doesn't have to wait days (at best) for
: shipping and delivery. Does anyone know
: where I can get this?
: Also, I am being informed that I should ask
: the hospital to run an "echo" on
: our newborn to follow up on common issues
: that run with Micrognathia and PRS. What
: does anyone know about this?
: Please help ASAP. Prefer email, but will
: take anything provided.
I live in Phila. Pa.and thak God for childrens hospital of Pa.The nurse should hook you up with someone who sells the haberman.It is a necessity with PRS,If They can't help you go to the resourse center.If they can't help you,let me know.I will get them for you!
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