Posted by Di-Ann
![]()
on 7/10/2010, 8:34 pm, in reply to "low muscle tone"
71.185.103.166
--Previous Message--
: hi,i was checking to see if anyone's child
: with pierre robin has any low muscle tone
: issues. my son is 5wks old & has a mild
: case of pierre robin & when he was
: having a follow up visit with his feeding
: specialist she noticed that he had a
: slightly low muscle tone in his neck and
: torso. he is able to move his head side to
: side and lift it up when lying on his
: stomach,but his neck tends to flop forward
: if not supported and his neck has to be
: supported to be held up. he just started
: going to physical therapy to help strengthen
: him up, i am just hoping that there is not
: some other underlying problem. i had an
: amnio,FISH test,cgh array,fragile x &
: sma tests done while i was pregnant &
: all came back negative. has anyone else's
: child has this issue with the muscle tone?
: thanks...
:
Absolutley!My son had torticullus on his left side I went to every therapy recommended.He will be 12 in Aug. and still has this very slight.Get all the therapy you can.
Message Thread | Skip to this response ↓
![]()
« Back to index
If you would like to join our email group, please check out our home page at www.pierrerobin.org and follow the instructions there. We would love to have you.