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Posted by Di-Ann on 7/9/2010, 8:15 pm, in reply to "Finding a Pediatrician??"
Go to your best childrens hospital in your area and go to plastic surgery/cleft palate team asap |
: I am looking for some advice about selecting
: a pediatrician for an infant with PRS
: resulting from Stickler's Syndrome. I am 27
: weeks pregnant and genetic testing is
: positive for Stickler's (which runs in my
: family). So far ultrasounds are showing the
: small jaw associated with PRS. Though we
: haven't been able to get a view of palate,
: we suspect that he will have a cleft palate
: as well. I am hoping that some parents can
: offer advice about what we should be looking
: for in a pediatrician or issues we should
: think about as we try to choose one. Are
: there any specific questions we should ask
: potential doctors? Any wisdom or experience
: that can be shared would be greatly
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