Pierre Robin Network Message Central
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Re: Pierre Robin
Posted by Jennifer on 5/28/2010, 9:06 am, in reply to "Pierre Robin"
Hello! It is so very hard to deal with the PRS in the beginning but things will get batter. I have a 2-year old daughter who was born with PRS and had her cleft palate surgery done at 7 months old. She also has other issues like hearing loss and poor eyesight but she is a happy, healthy and normal little girl today. I'm happy to speak with you anytime, please feel free to email me.
: I live in sweden and just had a boy whit
: pierre robin and "gomspalt" i dont
: remember what its name is in english! Iam
: very sad and just want to have someone to
: talk too....
: Love Mikaela
If you would like to join our email group, please check out our home page at www.pierrerobin.org and follow the instructions there. We would love to have you.
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