Posted by Katie
on 3/12/2010, 10:01 pm, in reply to "low muscle tone"
98.206.53.35
We've had the same problem and I've seen that many other parents here have said the same. To my understanding, it's typical of PRS kids. My son's was pretty bad for a while (maybe 40% delay). He is 19 months now, and has had physical therapy since he was born. He is doing much better and at his last review he was rated at 0% delay! Early intervention in key, the therapists are awesome. Sounds like you are doing all the right things! Good luck!
--Previous Message--
: hi,i was checking to see if anyone's child
: with pierre robin has any low muscle tone
: issues. my son is 5wks old & has a mild
: case of pierre robin & when he was
: having a follow up visit with his feeding
: specialist she noticed that he had a
: slightly low muscle tone in his neck and
: torso. he is able to move his head side to
: side and lift it up when lying on his
: stomach,but his neck tends to flop forward
: if not supported and his neck has to be
: supported to be held up. he just started
: going to physical therapy to help strengthen
: him up, i am just hoping that there is not
: some other underlying problem. i had an
: amnio,FISH test,cgh array,fragile x &
: sma tests done while i was pregnant &
: all came back negative. has anyone else's
: child has this issue with the muscle tone?
: thanks...
:
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