Pierre Robin Network Message Central
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Re: Considering a second child...
Posted by Mary Ann Durnwald on 1/30/2010, 4:11 pm, in reply to "Re: Considering a second child..."
: Correction... Haley shows NO genetic
: --Previous Message--
: Haley is over 2 and a half. She was born at
: 32 weeks with PRS. I have loved every
: minute of the sometimes trying journey. I
: would like to have another child. My
: husband is extremely worried that a second
: child might have PRS or something worse.
: Does anyone know statistics on PRS inside a
: family? The occurrence among siblings?
: Haley was genetic tested at after birth and
: showed genetic abnormalities and so far has
: had no other complications.
: Thank you,
: Haley's Mom
I have a 17 year old son who was born in 1992 with Pierre Robin. He had a Trach for 11 mos, Cleft Palate Surgery, Several sets of ear tubes, surgery for Nasal speech etc. Sticklers was never mentioned but lo and behold 3 weeks ago my niece gave birth to a beautiful little girl who you guessed it, has Pierre Robin (a word I never wanted to hear again). If I had millions of dollars I would bet it all that it is Genetic!!!! My sister also had a Cleft Palate 46 years ago. One of her daughters (the mother of the baby who was just born0 has hearing issues in one ear and another daughter has eye issues. I think there has to be some connection. My son is awesome and if you didn't know any better you could never tell what all he went through as a baby. I woory about when the time comes for him to have children what will happen! I wish this site would have been around back then!! Good Job!! Mary Ann
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