Hello! I haven't posted anything for a long time...saw your question and I remember feeling the same way! Our oldest daughter, Hannah, is now 10 and was born with PRS. She had a trach for 15 months and is now totally healthy and happy!! Her genetic tests were all normal and we knew we wanted a big family. With God's grace and lots of faith, we had 3 more kids...all born perfectly healthy!!We did have level 2 ultrasounds with each one to check for jaw development. Take care~email if you have more questions Elisa
: Haley is over 2 and a half. She was born at
: 32 weeks with PRS. I have loved every
: minute of the sometimes trying journey. I
: would like to have another child. My
: husband is extremely worried that a second
: child might have PRS or something worse.
: Does anyone know statistics on PRS inside a
: family? The occurrence among siblings?
: Haley was genetic tested at after birth and
: showed genetic abnormalities and so far has
: had no other complications.
: Thank you,
: Haley's Mom
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