Posted by Rebecca
on 12/8/2009, 6:38 pm, in reply to "Having a Baby with PRS - Lots of Questions"
173.60.202.24
Thought I'd post an update for anyone following my story. Had an ultrasound last week at 26 weeks and 4 days, but just with an ultrasound technician. The good news is the baby is still growing well and measuring right in the 26 week and X days range for all his body part measurements. The lower jaw is still very small though. Also saw an OB and discussed various things and she has cleared me to see the resident midwives to attempt a VBAC. She wants me to see a perinatologist next week and have another ultrasound with him and then I will see him about every 4 weeks and have ultrasounds at the same time until delivery. I've also decided to go see a therapist to talk about this and other issues so I can be in the best mental and emotional frame of mind when this baby comes.
Rebecca
--Previous Message--
: I found out at a 21 week ultrasound that my
: yet to be born baby has been identified with
: PRS. The micrognathia was really obvious in
: the ultrasound profile (even I spotted it
: and could tell something wasn't right). The
: genetic specialist could not be sure if
: there was a cleft palate, but thought she
: saw a small one. Obviously right now we
: have no idea of the severity of the problems
: once the baby is born, but after having read
: some info about PRS, I have many questions,
: some of which I can't even bring to mind
: now, so I am sure I'll be back with more.
:
: I'm especially interested to hear of anyone
: who has been in a similar situation. What
: was your follow-up prenatal care like once
: you found out the baby had PRS and what did
: you do to prepare in advance of the birth?
: Were you made to have a c-section (because
: of the PRS) or able to give birth naturally?
:
: I also have some care questions. I am a big
: proponent of breastfeeding and nursed my
: first for 18 months and only had a small
: hand pump to use as needed (not much). Now
: I'm expecting to almost exclusively pump, at
: least for some time, and looking into high
: end breast pumps like a high end Medela
: hands free one or wondering if I should get
: a pump from the hospital (cost involved not
: a factor to worry about). Also looking at
: the different types of bottles. Has anyone
: had any success at moving from bottles to
: breastfeeding later on (once jaw is more
: forward) and have any tips?
:
: I keep reading about not putting PRS babies
: on their backs, but can they be on their
: backs at an angle (most car seats are like
: that) or in a bouncer chair? How do you
: keep them from turning onto their backs at
: night?
:
: How long were your babies kept at the
: hospitals after birth and under what
: circumstances? (I am already planning on
: delivering at a hospital that can care for
: babies with major complications, so will not
: need a hospital transfer.)
: