Hi Mindy - we saw a dentist affiliated with our craniofacial team to look at my son Charlie's teeth. This was when he was about 18 months old. At the time he had maybe 8 teeth. The top front two slant inward. The bottom two are crooked. The others have since grown in and look 'normal'. In any case, the dentist said she cannot tell us now what his permanent teeth will be like because they have not even formed yet. We need to wait and see as Holly noted. But I think it is highly possible that PRS kids can have crooked permanent teeth given the formation issues of their mouth. For now, I am mentally preparing for lots of orthdontia! Have you been able to find a dentist with some experience with cleft kids? They could give you some good insight. Susie
: Our son is now 7 and had isolated PRS as a
: baby until the age of 15 mo when he trach
: was removed...he never had jaw distraction
: and the jaw grew out on its own....our son
: is now developmentally perfect...all you see
: now is a tiny scar at the base of his neck
: from the trach as a baby...
: Our question is...he has lost his first
: tooth on the bottom and the
: "tooth" that is coming in looks a
: little "off"...have any of you had
: experiences where the permanent teeth aren't
: formed correctly??
: We figured if there were any problems w/
: teeth, this would have happened with no baby
: teeth forming at all...his baby teeth are
: formed perfectly....white w/ enamel filling
: up his mouth w/ no problem....this permanent
: tooth coming in seems too skinny and
: thin...(he lost the tooth yesterday)....
: any comments or help would be great!
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