Posted by Jennifer E
on 11/3/2009, 9:25 am, in reply to "Re: Johnathan"
35.9.194.77
One more thought...even though Johnathan's chin doesn't appear to be recessed, his airway could be on the smaller side. Although it's minimal, it may be just enough to cause some respiratory distress now that the palatte is repaired. As he grows more it may improve, but I do think a sleep study might be helpful. Keep me posted 
--Previous Message--
:
: HiJennifer,
: Thanks for your kind response. Johnathan did
: not have either a trach or jaw distracion.
: Since birth his lower jaw has grown
: appreciably and now there's little external
: evidence of any significant difference with
: his upper jaw. My concern is more
: specifically his difficulty breathing
: particularly with the onset of a cold or
: sinus problem.I will pursue the sleep study.
: Thanks for your kind advice, any other
: comments would be appeciated.
:
: --Previous Message--
:
: Hi Philip,
:
: I have heard that repairing a palate
: actually reduced the space leading to the
: airway. This can cause some breathing
: problems, which is why some surgeons insist
: upon waiting until kids are bigger. The
: challenge becomes balancing speech
: development and airway issues. If a child
: has a trach or had jaw distraction the
: concern may not be an issue, but if the chin
: is still somewhat recessed is can cause
: problems after the palatte is repaired. I
: would recommend having a sleep study done.
: Did Johnathan have jaw distraction or a
: trach? Hope things improve soon.
: --Previous Message--
: My grandson Johnathan is now 22 months and
: was
: born with PRS. He had cleft palate repair
: done in May 2009 and since that time has
: developed a chronic respiratory problem
: which results in heavy short breathing, he
: has also been slow in gaining weight. Any
: advice or comments would be greatly
: appreciated.
: Thanks,
: Philip
:
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