Posted by Tanja
on 11/2/2009, 12:23 am, in reply to "Pectus excavatum (sunken chest)"
84.192.212.41
Hello Rachael,
Our son (4 yrs) with isolated PRS has also got pectus excavatum. He has some breathing problems when he's very active. (running, ... )
His doctors told us that it could be caused by his "suncken chest". But we don't have to worry about it. For now he has to excercise every day with a bottle and a strawl to enlarge his longue capacity. As long as it's not getting worse , he won't need an operation. Future will show.
Kind regards
Tanja (from Belgium)
Mom of Kyno (4 yrs): PRS with mental+physical retardation, swallowing disorder, hearing loss,pectus , osas, ...
and Kiana (6 yrs) : Autism with mental+physical retardation.
--Previous Message--
: Hello again, so I have a new concern and am
: wondering if anyone else has an opinion, my
: husband and I have been concerned about our
: son's "sunken chest" and I have
: recently come across the medical term Pectus
: excavatum. I didn't realize that this was
: something that is associated with PRS. We
: believe his was caused by weeks of
: struggling to breathe and his chest
: retracting as a newborn. He had oxygen sats
: in the 80's & 90's for weeks until they
: finally put him on oxygen. His chest is not
: deeply sunken but it is noticeable. Does
: anyone have any advice as to specialists,
: testing, or procedures associated with this?
: I appreciate you help
: Thank you,
: Rachael
: Mom to Brody 16months Isolated PRS
: LTA, G-tube (now removed), Mandibular
: Distraction, P.E. Tubes, Repaired Cleft
: Palate
:
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