Posted by Rachael
on 11/1/2009, 5:34 pm, in reply to "Pectus excavatum (sunken chest)"
81.158.96.44
Thank you for the quick responses, I am in the midst of calling around to set more appointments for various specialists and will add geneticist to my list. He did have blood sent to the Mayo Clinic when he was in NICU but I would love to sit down and discuss everything further with someone who has experience with PRS and the related syndromes. Thank again 
--Previous Message--
: Hello again, so I have a new concern and am
: wondering if anyone else has an opinion, my
: husband and I have been concerned about our
: son's "sunken chest" and I have
: recently come across the medical term Pectus
: excavatum. I didn't realize that this was
: something that is associated with PRS. We
: believe his was caused by weeks of
: struggling to breathe and his chest
: retracting as a newborn. He had oxygen sats
: in the 80's & 90's for weeks until they
: finally put him on oxygen. His chest is not
: deeply sunken but it is noticeable. Does
: anyone have any advice as to specialists,
: testing, or procedures associated with this?
: I appreciate you help
: Thank you,
: Rachael
: Mom to Brody 16months Isolated PRS
: LTA, G-tube (now removed), Mandibular
: Distraction, P.E. Tubes, Repaired Cleft
: Palate
:
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